News

The big day has finally arrived for Jay and Pamela. Both have a rare genetic disorder called osteogenesis imperfecta type 3 ...
The TLC stars were born with the same rare genetic condition and have broken more than 400 bones between them.
This year, the group is fundraising for Shriners Children's in Greenville, South Carolina.
For the last 12 years, the Alee Shriners in Savannah have been hosting an 'Iron Butt Ride' fundraiser. It's a 24-hour ...
Jay Manuel, 28, and Pamela Chavez, 30, were both born with a rare disorder called Osteogenesis Imperfecta Type III (OI).
How a 1981 episode of 'Mister Rogers' Neighborhood' opened kids' eyes to one boy's story — and now inspires a new character ...
Jeff Erlanger was a longtime fan of Fred Rogers before appearing on his show, and the two became friends for life ...
Ultragenyx's strong revenue growth, diverse streams, and late-stage pipeline make it a standout in rare disease and gene ...
The South African comedy industry’s biggest stars gathered at the 12th Annual Savanna Comics' Choice Comedy Awards, where the best of Mzansi’s comedy scene was celebrated. The ceremony was a showcase ...
Living with two rare genetic disorders — Osteogenesis Imperfecta and Larsen-like Syndrome — Moriarty faces daily challenges due to brittle bones and soft cartilage. However, her condition hasn't ...
Osteogenesis imperfecta also has many types with varying levels of symptoms caused. It is important to know more about this ...
More than one million people will receive between £29.20 and £187.45 each week over the new financial year through PIP or Adult Disability Payment for musculoskeletal conditions.